Friday, June 19, 2015

New combination treatment for RSD

The Neuroscience Center in Deerfield, IL has pioneered a new treatment that is giving RSD patients much relief.  Dr's at the Neuroscience Center have combined two therapies together, a high-dose intravenous ketamine infusion and during one hour, patients simultaneously receive magnetic stimulation of the brain (known as TMS).  TMS works on the brain's pain center.  Patients may require dozens of treatments.

Objective tests have been done which monitor patients with an imaging procedure called brain SPECT.  This allows doctors to monitor blood flow to different regions of the brain.  The scans show a rebalancing of the blood flow to the brain after treatments.  This combination therapy is being used for other chronic pain conditions as well such as fibromyalgia, phantom limb pain, & rheumatoid arthritis.

Neuroscience Center
440 Lake Cook Rd.
Deerfield, IL 60015
847-236-9310

http://www.neuroscience.md/

Tuesday, June 16, 2015

Stem Cell Therapy for RSD

Dr. Robert Schwartz, the principal at Piedmont Physical Medicine & Rehabilitation in Greenville, SC published an article about stem cell therapy and it's benefits for pain and more specifically it's use to treat RSD.  Dr. Schwartz indicates that 43% report at least 90% lasting relief.  86% report at least 50% lasting relief.

There are two types of stem cells used, autologus and placental.  Autologus are those which are from a patient's own blood or marrow.  With autologus stem cells, the pain relief is quicker than with placental stem cells.  Placental stems cells are found in the placenta and are collected after the blood from the umbilical cord is drawn.  The relief from the placental stem cells is longer lasting than from the autologus stem cells.

Dr. Schwartz's full article can be found here:   http://piedmontpmr.com/stem-cell-for-knees

Saturday, June 13, 2015

RSD sufferer, activist for medical marijuana in South Dakota

Melissa Mentele, who suffers from RSD, put together a proposal to allow people with a serious debilitating condition to use medical marijuana in South Dakota.  Mentele is seeking 13,871 signatures before November 8th, in order to get the proposal on the 2016 ballot.  The proposal would allow patients to possess up to 3 ounces of marijuana.

Melissa Mentele's twitter:  @605compassion

Tuesday, June 9, 2015

Study results from St. Jude Medical

St. Jude's Medical Axium Neurostimulator System works similar to a spinal cord stimulator but the results from a recent study shows superior relief from the Axium Neurostimulator System.  152 patients participated in the study which lasted for 3 months.  The patients that participated in the study using the Axium Neurostimulator System reported more relief vs. those using the traditional spinal cord stimulator (81% vs 56%).  


Monday, June 8, 2015

Car Show / RSD Walk in Scranton, PA

The 10th Annual Car Lover's Car Show & The Walk Two Miles in My Shoes walk will take place on Sunday, June 14th @ McDade Park in Scranton, PA.


RSD Walk:

     Date:                  Sunday, June 14, 2015
     Where:               McDade Park, Scranton, PA
     Registration:      12:00 - 1:00pm
     Walk Begins:     1:00pm
     Donation:           $10.00

Benefits RSD research

Sunday, June 7, 2015

Dr. Steven Richeimer


Dr. Richeimer is who I consider my RSD specialist.  He is the Chief of the Pain Medicine division @ Keck Medicine of USC.  He has treated many RSD patients.  I like Dr. Richeimer because I feel confident that he understands the condition.  He also sits and listens to you....never making you feel rushed.

Recently, Keck Medicine has started to offer Ketamine infusions.  I will soon begin a series of (2) 4-hour infusions per month.  I will provide a review on the infusions on this blog.  

Dr. Steven Richeimer
Chief, Division of Pain Medicine   
Keck Medicine of USC
1520 San Pablo Street  Suite 3450
Los Angeles, CA 90033
323-442-6202

Friday, June 5, 2015

How to get the best possible care for RSD

Getting the best possible care for RSD, early, is crucial to your outcome.  Being treated by a Dr. that is unfamiliar with RSD can actually worsen your condition.

Unfortunately, most people will not have the insurance coverage that will allow them to go to the top RSD doctors.  This means you must do your homework on the doctors that you are able to go to.  Ask the doctors if they have treated RSD before and how familiar they are with the condition.  Also, ask other RSD sufferers in your area who they may recommend.

The most important advice I can give you concerning getting the best possible care is YOU MUST EDUCATE YOURSELF.  You must be your own advocate.  Educate yourself on the various forms of treatments (medications, procedures, etc).  If a doctor recommends a procedure that you are not familiar with, educate yourself about it prior to agreeing to it.  When you have a good understanding for treatments and know what direction you want to go with your treatment plan, speak up.  Tell your doctor how you want to be treated.  If your doctor doesn't agree, then find another doctor.  Unless you are seeing an RSD specialist, you will quickly find that you are the one educating your doctor about the condition and what treatments are best.  

When finding a psychologist, it can be beneficial to find one that deals with chronic pain.

You may consider visiting an RSD specialist and paying out of pocket for at least one visit.  A consultation may give you some direction and advice that you can take back to your local doctor.  A specialist may cost around $200-300 for a consultation.

Also, RSD seminars are held all over the country to educate and raise awareness.  These seminars usually feature doctors that are experts on RSD.  These seminars are helpful in educating patients on the latest news on various treatments and sometimes up and coming treatments.